A LOCAL family’s dream became a reality when the Traceys were able to purchase a car that will help their two-year-old daughter, Ava, gain greater mobility.
Ava, from Goodna, was diagnosed with Spinal Muscular Atrophy (SMA) at just 11 weeks old.
The life-limiting genetic condition affects muscle strength and movement.
Last year, Local Ipswich News reported on the family’s challenges and the community’s efforts to support them.
Now, thanks to overwhelming generosity, parents Rachel and Ben have purchased a Kia Carnival – a vehicle that will accommodate Ava’s needs as she grows.
“We picked up an Ava-mobile!” said Ms Tracey.
“This generosity has made a huge difference in our lives, and we couldn’t have done it without you. From the bottom of our hearts, thank you for helping us reach this milestone.”
The family’s fundraising success came from community donations, fundraising events, and support from charities MOVE4BELLA and Aussie Kidz Charity, which provided generous grants.
Mr Tracey explained the financial challenges of buying a suitable vehicle, particularly with limited government support.
“On a single income, purchasing a $50,000-$60,000 car is near impossible and not funded in any way by NDIS,” he said.
“While the NDIS provides funding for modifications, it does not provide any funds for the purchase of the vehicle itself, and so my mother-in-law created the GoFundMe to help us out. Because the guidelines around which cars can be modified are very tight – covering make, model, age, warranties, etc – we specifically raised funds for a Kia Carnival.”
When Ava was born, SMA was not included in Queensland’s newborn screening tests, delaying her diagnosis.
“At the time, the Queensland Government had dragged its feet and hadn’t added it yet to newborn testing,” Mr Tracey said.
“Because of that, it wasn’t picked up until she was already affected.”
Ava still faces challenges, requiring therapies, medical appointments, and lifelong mobility support.
“She is unlikely to ever walk functionally, if at all, and will require lifelong use of a wheelchair,” Mr Tracey said.
Despite the hurdles, Ava’s future looks bright.
“We can only hope the next vehicle purchase we make is something partially self-driving or highly accessible for when Ava can get her L plates,” Ms Tracey said.
