THE impact of discrimination of people living with dementia can lead to delays in diagnosis and increased social isolation, a new report has found.
The report, “Dismantling dementia discrimination: It starts before the diagnosis”, explores the impact of discrimination and how early diagnosis, community awareness and support are critical components to ensuring that people with dementia are supported to live as well as possible.
Dementia Australia CEO Maree McCabe said delays in diagnosis and accessing services can have serious consequences for the physical, cognitive and psychosocial health of the person living with dementia.
“An early diagnosis means people with dementia can access vital support and resources sooner, to help support a better quality of life and to plan for the future,” Ms McCabe said.
“Dementia is largely an invisible disability and what people can’t see they don’t understand and what they don’t understand they tend to avoid.
“A little support for people living with dementia really can make a big difference and communities can play a big role in learning more about how they can support people living with dementia.
“This support can include creating physical environments that are more dementia-friendly and improving understanding and awareness of dementia amongst the community and health care professionals.
“Dismantling dementia-related stigma and discrimination requires a collective effort. A little bit of support can make a big difference in the lives of people with dementia, their families and carers, particularly to the estimated 65 per cent of Australians with dementia who live in the community.
“Some of the practical things people can do is consider the lighting and signage within a physical space so it’s easier to navigate. Small changes such as easy to read signs with graphics on doors, such as a toilet door, are very useful.
“Another simple thing people can do is introduce yourself each time you meet, even if you have known the person living with dementia for a long time, it can be helpful to use a simple greeting such as ‘Hi Lisa, it’s Peta’.
Australian and international studies show that stigma and discrimination associated with a dementia diagnosis can discourage people from seeking health care, including a diagnosis, and reduce social engagement with family, friends and the broader community.
A 2021 Dementia Australia survey found 65 per cent of respondents who live with dementia believe discrimination towards people with dementia is common or very common and 87 per cent of people living with dementia surveyed felt people patronise them and treat them as if they are not smart.
Bobby Redman, a retired psychologist, lives with dementia, is Chair of the Dementia Australia Advisory Committee and has shared her story as part of this year’s Dementia Action Week campaign.
